Logo Finalist

High Ferritin App

FAQ

For assistance with using the App, please contact:
therapeutichelpdesk@redcrossblood.org.au
or telephone (08) 8112 1341 between 0900 & 1700 EST

What is the High Ferritin App?

The High Ferritin app is a mobile app or web based tool which has two purposes:

  1. To enable doctors to determine the eligibility of patients and place referrals to undertake therapeutic venesection at Australian Red Cross Lifeblood.
  2. To provide education on possible causes of high ferritin.
The app replaces paper-based therapeutic referral forms.

Back to Top

How do I access the High Ferritin App?

You can access the app at our website: highferritin.transfusion.com.au

Back to Top

How does the High Ferritin App work?

A doctor enters patient HFE genetics and ferritin levels into the app. An algorithm then determines whether the patient may benefit from therapeutic venesection.

If venesection is appropriate for the patient, the referring doctor is asked screening questions to determine if the patient would likely meet Lifeblood donor eligibility guidelines. If the patient is likely to be eligible, a recommended and modifiable venesection schedule is determined for the patient. The treating doctor may then log into the app, record the patient’s details, and print and email a copy of the venesection schedule for the patient and their own records. The app automatically sends the patient’s details to Lifeblood so that Lifeblood can call the patient to make appointments.

Back to Top

What if the High Ferritin App determines that my patient is not eligible for therapeutic venesection at Lifeblood?

If your patient has high ferritin unrelated to gene-positive haemochromatosis or secondary polycythaemia, he or she will not be eligible for therapeutic venesection at Lifeblood. Provided this patient meets our other donor criteria, she or he may wish to become a voluntary whole blood or plasma donor. Donations can occur up to every 12 weeks. If your patient has high ferritin, you will need to rule out some causes before she or he can donate. The app provides you with the ability to generate an electronic referral advising the patient may be suitable to commence donation as a volunteer blood donor.

If your patient is declined by the app but you still believe he or she should undergo therapeutic venesection at Lifeblood, you will need to complete a document available in the app and forward this to Lifeblood therapeutic helpdesk at: therapeutichelpdesk@redcrossblood.org.au. A Lifeblood doctor will then contact you to discuss the patient’s condition and to determine suitability for venesection.

Back to Top

What if my patient does not have high ferritin or the associated genetics. Does Lifeblood accept therapeutic venesection for any other conditions?

Yes – Lifeblood will continue to accept patients with the following conditions, provided they are being treated by a Specialist Physician:

Patients with secondary polycythaemia are no longer accepted as therapeutic donors by Lifeblood.

Back to Top

What if my patient is accepted for therapeutic venesection by the app, but does not meet Lifeblood eligibility guidelines?

Lifeblood eligibility guidelines are regulated for the protection of our donors, staff and products. Some patients will not meet these donation guidelines and we will not be able to offer therapeutic venesection to these patients. You will need to consider referral to an alternative provider for venesection.

Back to Top

What if my patient has both haemochromatosis (or an elevated ferritin) and polycythaemia or porphyria?

Please complete your patient's referral by selecting the Polycythaemia/Porphyria tab. This will ensure the most appropriate assessment of your patient's eligibility and the most appropriate use of your patient's blood. Patients with polycythaemia vera or porphyria cutanea tarda are eligible for therapeutic venesection, provided they are being treated by a Specialist Physician.

Back to Top

Is the High Ferritin App medically sound? Has it been peer reviewed?

The algorithm in the app was developed in consultation with Professor John Olynyk, an expert in the field of iron disorders, and has been endorsed by the Gastroenterological Society of Australia,the Haematology Society of Australia and New Zealand, and Haemochromatosis Australia.

Back to Top

My patient was a therapeutic donor prior to the introduction of the High Ferritin app. Can he/she still continue to donate as part of the program?

In most cases, the answer is ‘yes’. Any patient previously referred to Lifeblood as a therapeutic donor prior to the introduction of the app can still attend as part of the therapeutic program.

The only exception to this is patients with secondary polycythaemia. Lifeblood no longer accepts these patients as therapeutic donors.

Back to Top

Can I see the records of patients who are not my own in the app?

Generally no – the app only allows you to view your own patient’s records. However, records may be shared with another registered user. Please see next FAQ.

Back to Top

How should I manage a patient who was previously referred to Lifeblood by another doctor using the app?

You will not be able to see the venesection schedule record of a patient previously referred by another doctor, unless they are a registered user and have shared their patient with you. Patients can be shared using the facility available on the page that lists your patients.

Back to Top

What happens in the event the app is offline and I cannot refer a patient?

Scheduled maintenance of the app will occur out of usual business hours. If the app is offline, please contact us at the help desk on therapeutichelpdesk@redcrossblood.org.au. A Lifeblood staff member will contact you to assist with the referral process.

Back to Top

How secure is the patient data entered into the app?

The app has been developed in accordance with Federal Privacy legislation and the national privacy principles.

The app itself stores personal information relating to the patient, along with the patient’s venesection schedule. This information is stored in an encrypted format.

The information generated by the app is sent to Lifeblood via an encrypted email. Lifeblood also handles information received in accordance with Federal Privacy law.

Back to Top

My patient has secondary polycythaemia can they join Lifeblood Therapeutic program?

No - Evidence does not support therapeutic venesection in this condition. If there are particular circumstances that require review please submit an individual assessment form.

Back to Top

Other Questions?

If you have any other feedback relating to the app, please contact us: therapeutichelpdesk@redcrossblood.org.au

Back to Top

Contact Us

* denotes required field


Copyright 2021 Australian Red Cross Lifeblood

The personal information that you enter on this electronic application allows your patient to be registered and enrolled as a Lifeblood therapeutic or normal volunteer blood donor, and for the person to be registered to provide blood for clinical use when donor selection guidelines are met. No personal information will be stored on the therapeutic application, but encrypted data containing personal information will be uploaded to a secure, Australian based server site for retrieval by Lifeblood. Lifeblood will handle all information received in the strictest confidence in accordance with the Federal Privacy Law.